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From what I’ve seen, here are some of the arguments against self-diagnosing:
- Allistic people using autism as an excuse for their behaviors/difficulties, then denying the difficulties that actually autistic people experience and misrepresenting autistic people.
- Narcissistic and psychopathic people pretending to be autistic to manipulate others, including actually autistic people.
- Misdiagnosing themselves when their difficulties are actually related to other root causes, such as prolonged childhood abuse.
In the first two arguments, the problem with self-diagnosing is the social impact it has on others, including the autistic community. I can see why some people are against self-diagnosing since it could make their lives harder, especially autistic people. The last one is more about helping the individual properly understand them-self and developing a proper course of action to improve their lives, so it’s an argument rooted in care.
I am not entirely against self-diagnosis. However, I think it could be re-phrased to “self-identified” since “diagnosis” is a medical term. It would be like a person saying, “I’m self-diagnosed with depression.” That person isn’t diagnosed with depression, though they very well may be depressed. It’s really just a pedantic issue from my perspective. Regardless, I don’t really care one way or the other because I understand what they are saying and think that an actually autistic person self-identifying as autistic is valid enough. Still, while I wont invalidate someone for self-identifying by gatekeeping autism, I tend to be a little cautious at first because of my experiences with people pretending to be autistic. In this case, I think the issue is that some jerks just can’t let us have nice things.
This is why there is such a trend in misinformation these days, a breakdown of distrust in institutions. I get why there is that distrust… institutional issues are easy to find in all fields, however that doesn’t stop them from being correct on the whole.
Look at Covid denialism, denying the results of the last election… the loss of peoples ability to believe experts in their fields. Unless people here are actual doctors no one here has the expertise to give a diagnosis. Everyone has become an expert these days and does their own research, reality doesn’t care about your intuitions on this though.
Saying this, you might be right you could be autistic based on your own feelings/observations. That still doesn’t make it a diagnosis.
I saved a pic of an article I was reading, this is a good example of being an expert and being someone that has interest in a subject but not having the training and knowledge to fully understand it, I read this a bunch of times and still don’t actually understand it as I’m sure most people here won’t either.
There is nothing wrong with being sceptical of experts as they can be wrong and wanting second opinions on things however that doesn’t make you an expert because you can google things.
Are you an expert in psychiatric diagnosis? Neither am I, but I have spent enough years with loved ones trying to navigate the so called mental health system or industry. Scratch a little on the surface of psychiatry and you find not science, but snake-oil, pseudo science and lots of abuse.
There is an enormous gap between a diagnosis made by a medical doctor based on medical exams, and a diagnosis made by a so called mental health professional based on talking to you for ca. 55 min. Or make it even 2 x 55min. The professional might, based on their culture or experience, diagnose you with Borderline disorder (a popular option for teenage girls), Bipolar disease (a favourite for the male midlife crisis), general anxiety and/or chronic fatigue and/or chronic pain (for women who have learned they have to function to have value, hear dearie take another pill!) or a range of other things currently in fashion or in fashion when the person learned their trade … nobody sits out there in their psychiatric practice and actually measures people’s brain functions, like with real science (although there seems to be evidence that in the case of ASD/ADHD one actually could).
I distrust health and especially mental health institutions because I haven’t gotten the support from them they claim they offer. Their medications have consistently made my loved ones and me worse. Their advice was either non-existent or trivial (I could have googled it). Their structures were all built to induce the symptoms they claim to cure (ever saw a bunch of overworked doctors and nurses smoke in the hospital entrance? Ever looked at what’s inside of a hospital vending machine? How a psychiatric patient spends their day?
(Unless you have money to spend on more agreeable mental health surroundings, like you could send your socially awkward child to a nice kind of institution.) /s
Just picking out two of your arguments:
A psychiatrist is a medical doctor.
During my assessment for ADHD an EEG was administered and the assessment for autism in my country includes on as well.
Who wrote this rubbish? Doctors aren’t willingly recommending abuse, and most of them refer to specialists.
Doctors aren’t willingly recommending abuse
Boomer doctors aren’t dead yet, and haven’t learned anything since the 70s.
But seriously, think about whatever industry you’re in. Surely there are the ‘old guys’ who haven’t kept up with the progress, but are still around kind of doing a poor job of things. Not all old people, surely, but a fair number. At least, that’s how it is in IT.
That still doesn’t mean they recommend “abuse.” Every doctor in the US must renew their medical license every few years and that means taking continuing medical education classes. Nobody is recommending therapy from the 70s anymore.
Also, it’s still vague about what this “abuse” is so it’s hard to debunk a vague accusation.
ABA therapy. That is the abuse being referred to.
ABA is abuse and very commonly recommended to autistic people (or more often, forced on autistic kids by parents).
Oh is that what ABA stands for?
I thought it stood for American Bar Association. I still do, since no other definition was offered. I would disagree that the American Bar Association is abuse.
It refers to Applied Behavioural Analysis.
I still don’t understand why so many people are against self-diagnosis. Someone is suffering and trying to find help, a lot of people, especially minorities and women, can’t find it professionally. What’s wrong with those people looking for help themselves? Having a word for what is different with you helps finding this help.
I’m not talking about people claiming to be autistic and demanding attention and accomodations, that’s a whole different story but trying to keep people from finding help themselves seems to be very wrong to me.
“I still don’t understand why so many people are against liars”
When you create an environment in which nothing has to be empirically proven then you attract liars. Liars will actively make things worse for people who are actually neurodivergent.
It isn’t that much of a stretch.
It’s not like you can prove that someone is autistic. It’s not like there’s a blood test, an x-ray, an MRI etc. that can be administered and the results be reproduced.
It’s diagnosed based on observed behavior and doesn’t really take into account what life feels like for the individual. So getting diagnosed can be very difficult for people who can mask well and on the whole don’t represent like a young boy. Those people can just go on and suffer further then in your opinion?
I’m going to repeat myself, I’m not talking about people who demand accommodations and attention. I’m talking about people who look for ways to make their life livable. Those people are not liars, they are suffering and searching for help.
searching for help
No I’m not saying they should suffer, I’m saying they should actually seek help.
Declaring you’re neurodivergent and associating with other people who claim the same is delusion.
Yes there are bad doctors. When you see a bad doctor you go to a different doctor. Otherwise all you’re successfully doing is ensuring people treat you differently. Which, in my opinion, is actually the point.
Well, I live in central Europe. In the second largest city in my country. There are two places that diagnose adult females. Waiting list says it takes 3-6 years to even start the process. I’m 42 and I’m not going to waste more years on fighting my brain until they finally have the time to diagnose me. And the most important thing is even when they do diagnose me there won’t be any help that I don’t have to find myself. It will simply be a note in my medical file.
I already know I’m neurodiverse. I’ve been diagnosed with ADHD last year and the neurologist who diagnosed me strongly suspected autism as well. She’s just not licensed to diagnose me officially.
So I went to look for resources, for books to help me understand why I might be the way that I am. For communities who might understand my struggles.
People in my life don’t treat me differently because I don’t demand accommodations. I might say that I need a short break to clear my mind, that I need some space or that I don’t really feel like talking but that’s it. I don’t demand they do anything differently, I simply learned more about myself and know how to react differently to things. And that’s what self diagnosis is about for me. Finding ways to make your life easier for yourself and not demanding others to accommodate you.
There are certainly people out there who claim to be neurodivergent or to have this or that mental health issue and demand to be treated differently. That is a problem and I acknowledge that. Especially with the rise of TikTok videos etc. it’s getting worse. There is a difference between those people and people who are just looking for ways to understand themselves better, finding ways to help themselves and taking the responsibility for doing that on themselves.
Criticizing the first group of people is one thing but telling the latter one their experiences are not valid is very hurtful and doesn’t help anyone.
Thank you for your patience in responding to hurtful and dismissive ignorance. The “it works for me so you’re lying!” attitude towards the medical system here is maddening.
Well, I do kind of understand the position. I’m bothered by all those people saying “everyone is a little bit ADHD” as well.
I just think there needs to be an open dialogue about self diagnosis and that there is a difference between people just claiming something and people who did their research and “soul searching”, maybe even have professional opinions but no official diagnosis.
In “Unmasking Autism” Devon Price called my generation the lost generation. Women and minorities who grew up during a time when autism was being diagnosed but the criteria were based on behavior of a Caucasian young boy. We were overlooked and had to fight for ourselves. When I went to elementary school Asperger’s syndrome wasn’t even in the DSM yet.
Tbh, I’d much rather be neurotypical or at least have resources to actually help me. Unfortunately that’s not an option so I’m doing the best I can.
Tbh, I’d much rather be neurotypical or at least have resources to actually help me. Unfortunately that’s not an option so I’m doing the best I can.
I’m so sorry you’re wishing to be someone else. YI imagine you must experience significant difficulties to get there. Still, I’m happy you have the motivation to continue making changes in your life so you could be happy. If you find anything useful, please share so that us other autists can learn about it :)
