You were disabled and realize it is not getting better, and no one seems to be able to fix the issue. You’re stuck laying down most of the day, you have enough mobility to function at home, but anything outside of home leaves you in bad shape beyond your control where you are not professionally functional. What do you do to earn a living and survive?

This is not a hypothetical for me.

  • GONADS125@feddit.de
    0·
    9 months ago

    I have struggled with long covid and it’s interaction with my hypermobility EDS for a little over a year now. Derailed my entire life…

    Lost my job, strained my marriage so bad and caused my wife (who just doesn’t understand) to resent me…

    I’m finally getting my life back on track. I am finally going to graduate school, and I am very close to working an in-person job again.

    I still am not back to my old self, and I’m not sure I ever will be. Not just with the chronic fatigue and stuff, but my brain function/thinking still doesn’t feel normal…

    I don’t even know how to describe long covid or where to begin. I was someone who never got sick. I was so close to dying for so long. I’m convinced I wouldn’t have survived if I wasn’t fully vaxxed. For a long time, I wished I hadn’t survived.

    I’m sorry you’re having to move back with family. I hope you start to notice positive change, even if it’s so incremental it’s almost imperceptible. It was an unbelievably slow change for me, but it eventually became more exponential.